Sunday, September 27, 2009

Last day of this med segment!

Sorry I haven't been able to write until today. I have saved until today to update, but I have to admit that today is the worst I have felt. These antibiotics are SO potent. I can feel them take affect about 1 1/2 hours after I swallow them. I dread it, but know I need to push through to get better.

Before I update you how my treatment week is going, I want to mention a couple of prayer requests. Last week, I received an e-mail forward about my LLMD, Dr. Jemsek and his family. As you know already, Dr. J is having to move his practice. No one really knows for sure as to the exact reason why, but everyone is guessing it has to do w/ the politics of Lyme disease and the fit some state's medical boards throw in regards to treatment. However, again, that is not fact, that is only my guess. Anyways, in this e-mail it said that Dr. J is facing some really difficult family issues on top of everything else. The second week in September, his wife was diagnosed with Breast Cancer and as if that isn't hard enough to deal with, one week later his 5 year old daughter was diagnosed with Leukemia. I can't imagine what that family is going through. It seems to me that they are getting attacked on all sides. We really need to surround that family with prayer and protection. Dr. Jemsek does so many wonderful things for patients all over the world.

Okay, now on to the update. We started on Wednesday. The dizziness, nausea, aches came by evening (starting to be a normal pattern). I started developing painful sores in my mouth and throat which we think was caused by the antibiotics killing off too much "good" bacteria, but weren't sure at that time. I cut out all sugar and lowered my carb intake (that's hard to do when you can only eat about 20 things) as suggested by what I read on the internet and my wonderful Lyme Disease friends through the website "Lyme Friends" (the "bad" bacteria feeds off of sugar, so if you can starve them, they will die). I also swallowed Baking Soda and it actually did the trick. Thursday morning they were gone. I did sleep very good Wednesday night which is such a change from when I am not on antibiotics. It's nice to get a break from the insomnia. I know I haven't talked about that before, but on a normal night, I sleep about 3-4 hours of the 10 hours I lay there. Lyme will do that to you and it's exhausting. I have spent most of my time in bed since Wednesday, watching movies, doing school work and talking on the phone when I am up for it.

Friday was another drug day. Praise the Lord, I made it to my lab appointment. I was a little concerned as I couldn't be up very long without feeling like I was going to pass out, however God was good and I made it through. Thank goodness those lab techies are quick! I have run a low-grade fever off and on which isn't fun, but another sign it's working. I also have been having a lot of trouble with my heart rate being elevated and beating forcefully. We know we are fighting the Lyme in my autonomic nervous system, so currently I am just pushing through. We are hoping it doesn't get too bad where we have to switch meds.

Today will be my last drug day and then two weeks off. I started reacting to the double dose of probiotics today so we are going to have to figure out something else to do. I seem to tolerate one dose fine, but the second I get a small reaction. Nothing huge or dangerous, just more annoying. Hopefully, it will go away as I adjust to the dose. Today is rough. My biggest drug day and the day where I get the most symptoms. I won't go into the crazy list, but would just appreciate your prayers today and tomorrow.

Finally, this is the big week where we find out what interviews Brian has been accepted to in regards to his job hunt. The interview process uses the University of Arizona Career Services. No news yet and one of the sign-ups starts tomorrow. That career site has had some tech issues, and one of them was a couple of hours before Brian submitted all his applications. It is showing as pending application status for all of the companies, but Brian is going to double check tomorrow to make sure everything is A-okay on their side. Please be praying that he gets selected for some of these interviews as Brian really liked some of these companies and he really needs to get an accounting job by January even in this horrible economy. We are believing God for big things and know He will provide! Please pray that God would open the doors He wants to open as far as employment opportunities.

Well, I need to go lay down and rest. Thanks for your prayers!

Wednesday, September 23, 2009

And so it begins...

Hey all,

This will be short today. Just wanted to let you know that I got my lab results back and everything was normal. My liver enzymes were back in normal range. Yay God! So that means we can start antibiotics today. This will be our second round of treatment, so it will be interesting to see what happens.

It's been a hard week. We found out a wonderful lady who really took me in as her own when I was in Tucson for college passed away. She was very special and our thoughts and prayers are with her family these days. Also, last week we found out that my doctor is moving his practice to Washington DC. It was hard news to take as it means even a longer drive for us to see him (37 hours). We are praying that I will be well enough to fly by the next time he requires me to make an office visit. We have also considered moving to the East Coast, specifically Atlanta. My sis lives there, so we would have family. This just came up as an idea about two weeks ago before we found out my doctor was even moving farther away from us. However, if this was to happen, the Lord would definitely have to move mountains as far as a job for Brian and money to move. He has applied at the big 5 accounting firms which have offices in Atlanta. However, Brian is still applying in Tucson and it looks like there is a strong possibility a local company is wanting Brian if the logistics work out. Phoenix has also been an option, but Brian and I look at that as a last result as it takes us even farther West. As far as which we would prefer, each one of those options has pros and cons.

Finally, we have had some job changes for me. I tried to start adjusting my sleep schedule for my teaching job. I was staying up until 2 to 3AM and trying to sleep in the day, however I noticed my Lyme Disease symptoms started increasing. I was sad, as I was so excited to have the opportunity to teach again, however we felt it was best to have me resign from the position because of my health. I might still have the opportunity to teach individual students through a program called Phone English with the same company. I have been accepted for training, however I have yet to be scheduled. The hours of the job are during the day. We are just praying that God will open up this door if it's His will. It would be a great help financially.

Well, that is our update for now! We will let you know how treatment goes later in the week!

Blessings!

Thursday, September 17, 2009

Hey Everyone!

Sorry there has been such a gap in posting. It's been busy for us, but I wanted to make sure I gave everyone an update. Praise the Lord my Dad is doing SO much better. He is still having IV treatment at home and they aren't sure for how long that will go, however we are so thankful his arm is healing. Yay God!

Health-wise, I (Dawn) am doing good. The farther we get away from treatment, the better I feel. Oh the irony of that. I am still sick, it's just that the Lyme Disease isn't battling with the antibiotics so my symptoms are not as severe. We haven't seen a change in my allergies or sensitivities, but then again, we have just started treatment and are on the slow track. My next treatment is next week starting on Wednesday. It will be the same dosing pattern as the last time going Wednesday, Friday and Sunday and then two weeks off again. On Oct. 12th, I have a phone appointment with my doctor. At that point, we will talk about our plan for the upcoming months.

School for me is going well. It has not been difficult to manage at all. Big news for me is that I have a job. Now it's a bit crazy, but I am willing to do everything I can to not have to go back to my old position working customer service for the credit card company. It was WAY to stressful and the pressure they put us under to meet our metrics each week was insane. Knowing that I had to start working part-time in January (that has been our plan), I have been applying to places. Well, last week I received a call offering a part-time job teaching English to Korean children (South Korea). The crazy part is it's from 10pm to 2pm my time. That sounds crazy, but actually I feel like the Lord has prepared me for that work schedule. For the last 3 to 4 months, I haven't been able to fall asleep until 2 or 3am. My schedule is flexible enough that I can sleep in until noon to make up for the lack of sleep at night. I am really excited! I love teaching. It's actually a program that the entire South Korean government is implementing and there have been 9 teachers hired so far. They told us that we will be constantly monitored by the government (nerve wracking, lol) and that this is the largest online English program implementation that any country has ever done in the world. It's fun to be a part of something so big! We had to weigh our decision as we weren't sure if I could handle one more thing on top of treatment. However, after praying about it, we decided to let me try as it is only 4 hours a night, Sun-Thurs, and I have the option of only working 3 hours. My first classes are Sunday night and I would definitely appreciate your prayers!

Brian is deep into the application/interview process for accounting jobs with our hope that he can obtain one by January. He has had one interview that went very well and he has been told he is a strong candidate. Last night he went to "Meet the Firms" and he met many recruiters who were extremely interested in Brian and his resume/experience. We are just praying God will make His will clear, especially if there has to be a move involved. We are pretty limited in what would work for us, however we don't want to limit God. The next 1 1/2 months will be extremely busy and filled with interviews. Timing is important as it will be hard for Brian to travel if I am in the middle of one of my treatment weeks. If you would please pray that God would guide and direct Brian to the perfect job and that the details would fall into place, we would appreciate it!

That is all for now. We will update towards the end of next week with how treatment is going. Hope you are having a wonderful September. I can't believe Fall is almost here!! Stay warm!!

Monday, September 7, 2009

UPDATE from Last Blog Post (Two weeks off but an URGENT prayer request for my family!)

I am going to leave our update about my lyme treatment below, but I am going to update you on my Dad's situation.

He is doing much better, Praise the Lord! He is being released from the hospital today. He does have to have a picc line insterted so that he can continue to receive IV antibiotics for the next 3 weeks at home. We are so thankful that the infection in his arm finally started to respond to the antibiotics. I was teasing him asking him if he was sure he didn't have Lyme Disease as I told him that he is experiencing a lot of what my friends w/ Lyme Disease have to go through (picc line, IV antibiotics etc.). I told him he needs to take those probiotics! :) They did get the results back and the staph infection he has is called MSSA. It's milder than MRSA which is the one that is resistent to antibiotic therapy. We are just so thankful that they were able to get on top of it before it went into his blood stream/organs. Yay Jesus! He is our healer!!

Below is the same update that I wrote in my last blog post...Nothing has changed for us. Going to do lab work tomorrow and then will be waiting for the results. I am going to leave the post below in case anyone hasn't seen it. We will update when we hear something from my doctor.

Now onto our update....Sunday, was our last day of taking antibiotics. This time we had to add one more. I started out the morning pretty good (that is such a relative term these days). Got up and took my first large dose of amoxicillin. I think I have mentioned before, I am also on a quite a few drugs to calm down my autonomic nervous system as that is where the Lyme Disease bacteria has taken up residence. Those drugs have helped immensely with the flushing, irregular (racing) heart and temperature regulation among other things. Since they do have a tremendous sedentary effect, I do have to space out when I take all of them. After my large dose of amoxicillin, I waited about 1 1/2 hours to take the rest of my medication. This was the first time I had done this and boy was that a mistake. My system freaked out and I was getting flushing reactions every 5 minutes. It was awful. I was SO nauseous and my heart rate was going crazy. I was hot and sweating, but I was SO chilled that I was shaking. After that reaction, there is no doubt in our mind that the drugs are fighting the Lyme bacteria. I took my other medication and it took about 2 hours before everything calmed down. I was worried it would happen again in the evening (not totally realizing that my other medication prevents it) but praise the Lord, I was able to take all of my other antibiotics (including the new one) without any trouble. I have to add a side note and say that Flagyl (the new medication I added) makes everything smell and taste like those hard candy cinnamon discs. Kind of a strange, lol. Now I am on my "drug holiday" as they call it. No more antibiotics for two weeks. Yay! I also have still not been able to be up very much w/out getting symptoms. I do okay for about 15 to 30min but then have to sit or lay down. Hopefully, that will get better in the next week. If you would just please pray that when I do my labs tomorrow, that the blood work will come back normal (kidney, liver enzymes etc.) so that we can continue with therapy in the future.


Thank you so much for your prayers. Life certainly does have it's unexpected bumps but these bumps always give us more opportunity to trust in God's provision and protection.

Saturday, September 5, 2009

A Ride in Medication Land

HI! Happy Saturday. I told Brian this morning that the days seem to be running together more and more. Maybe it's the drugs, I am not sure. lol I wanted to write you an update and I apologize for not writing sooner. It has been a crazy couple of days but God has been so good. He has kept me allergic reaction free and the symptoms that I get from the medication fighting the Lyme Disease have been tolerable. I will walk you through the last couple of days.

Wednesday was the big day! We started the large doses of antibiotics. I was SO nervous but God gave me peace and I knew this was a means to an end. I tolerated both the amoxicillin and biaxin well. My stomach handled it well too, which we were concerned about because of my issues in the last couple of weeks. Now you might think, these are just two antibiotics and how can you get sick from taking them. Well, putting about 4000mg of it in your system and then having the Lyme Disease fight back, made Wednesday and Thursday were kind of rough days. I experienced a lot of joint/bone/muscle (not sure which, just knew it hurt), headaches, nausea and dizziness. I could tell it was fighting something, that is for sure! Since I didn't take any meds on Thursday (we do every other day for 5 days), by the evening I could tolerate being up and around for about 15 to 30min.

Friday was med day again. This day was a bit better as I think my system is adjusting to the medication. I still didn't feel the greatest, but I was able to function more until the last dose of amoxicillin late in the night. This morning I woke up w/ shooting pains down my arms and legs and hurt to walk. As I make posts about our journey in the future, you will see that Lyme Disease symptoms cover a lot of categories and they are pretty random from one day to the next especially when you are fighting the disease. I am in bed as I type this just waiting for my meds (that make me sleepy and help w/ nerve pain) to kick in. No antibiotics for me today so it's a recovery day.

Tomorrow (Sunday) is our last day of antibiotics for this round. We actually have to add one more called Flagyl. This type of medication is to break the cysts that the lyme disease bacteria takes up residence in so that the antibiotics are more effective. We are not sure what to expect while we add this to the mix. I have never taken this medication before so we shall see. Then I am off for two weeks before we do the whole thing over. Tuesday, I will have to get blood drawn to check all my levels and make sure my liver enzymes are not elevated from the treatment. I have a phone appointment with my doctor on October 12th where he will probably adjust my meds and make me take the antibiotics more regularly.

We also have an update on Brian's job search. He had an interview yesterday with the Arizona Audit General and it went very well. It seems like this job is a perfect fit for him and what he would like to do. They said they would let him know in about two weeks as they have to do about 4 to 5 more interviews. We are really praying for God's will in this. It would be SO nice to get this cemented for him so that he won't have to worry about fitting interviews in with his busy schedule. He does have a school function on Sept. 17th called Meet the Firms. This is where all the accounting firms and corporate organizations come and talk to accounting students during a meet and greet time. Interviews for open positions soon follow.

So that leaves us w/ our current prayer requests. Thank you so much for all of your encouragement and prayer support. It was such a wonderful blessing to receive those messages on facebook. Please keep praying for this last round of medication. Pray that I will stay reaction free and that I will be able to tolerate it. Please also pray that when my labs come back that everything will be normal and that my liver enzymes will not be elevated. This is vitally important so that we can continue with treatment in the future. Please also be praying for Brian's job. Pray that God will guide and direct Brian as to what interviews he should accept and that He will open the door to an accounting position in Tucson after he graduates in December.

Well, that is our update for now. I will make a post early this coming week after we get done w/ our meds on Sunday. Thanks again for praying. God is using them in a mighty way!! Cont. below...

I know I have had this post up for a couple of hours, but I wanted to add this video as it spoke so much to me. This journey has been long for us and sometimes difficult spiritually as we struggle to grasp God's plan for us, however when we stop and look around at those who suffer much greater in our world today, we feel blessed in our present circumstance. Everything we do and in all our circumstances our focus needs to be "For God's Glory". It's a good reminder for us as we believe God for my healing and as we begin on this new path. I wanted to post this video as it spoke to my heart and it's a good reminder of what our true mission is until Christ returns or we are taken home to be with Him. Remember, you will have to hit pause on my music player so you won't have that playing at the same time as the video. :)